If there is a diagnosis or strong suspicion of ovarian
cancer, immediately go find a board certified
gynecologic oncologist. This is a
gynecologist who has undergone years of extra training and
examinations to become board certified in the care of women
with gynecologic cancers. This includes performing surgery,
giving chemotherapy and recommending whether or not
radiation is required. Note that radiation is rarely used
in ovarian cancer treatment.
A board eligible oncologist who has completed fellowship
training is an option as well. This means they have
completed training, but are required to practice a few
years before being allowed to take the final board
certification exam. These energetic, recently trained
oncologists are usually in practice with more senior
physicians so you will often receive team based care in
such private or University practices.
If you are under the care of a gynecologic oncologist
who does not inspire confidence or does not present some
kind of positive outlook, go find another one. This is not
to say that they should be painting a rose garden picture.
However, it is reasonable to expect your main physician to
be objective but encouraging if at all possible. The
treatment is hard and the outcome may not always be the
best, but you do have a fighting chance and you should feel
that your gynecologic oncologist is in your corner,
providing personal attention and state-of-the-art
information throughout.
Do not let anyone, including friends,
family physicians, general gynecologists, surgical
oncologists, medical oncologists, or any other doctor
convince you that their team is just as good in the absence
of a gynecologic oncologist. You absolutely, positively
need a gynecologic oncologist as part of your team!! Again,
do not let anyone convince you otherwise.
You can find help and a list of gynecologic oncologists
in your area at www.sgo.org (Society of Gynecologic
Oncologists) or www.wcn.org (Womens Cancer Network).
To my knowledge there is no comprehensive and accurate
international directory. However, you might try
contacting the International Gynecologic Cancer Society
at www.igcs.org, who may be able to
help you find a gynecologic oncologist in your
country.
Your gynecologic oncologist may or may not work closely
with a medical oncologist instead of
administering chemotherapy his/her-self. A medical
oncologist is a doctor who specializes in giving
chemotherapy to patients with all different types of
cancer, gynecologic or not. Most do not see as many
patients with ovarian cancer as a gynecologic oncologist,
but can be very important members of a team approach in
treating your cancer. In centers or medical groups where
treatment is regularly delivered by a multi-disciplinary
team, medical oncologists play a critical role in
administering the chemotherapy, working in conjunction with
a gynecologic oncologist.
Who else do you need? First of all, don't forget that
YOU are a team member! The doctors you
work with will give you options, opinion, information,
treat you etc., but you must be an active decision-maker
because we are talking about YOUR body here. You also have
to be aware of what to look for in how your body responds,
so that you can relay that information to your doctor(s).
They cannot guess what might be going on with you. Make
sure that you feel comfortable with your doctors. You
should be able to ask questions, and relay fears and
concerns.
When you visit your doctor(s), make sure you have all
your questions lined up and write them down if you need to
in order to stay organized. Some doctors will let you
record your visits, others will prefer that you don't. An
alternative is to bring a family member or friend to help
you hear everything.
Other members of the team might include:
Primary Care Doctor - Your Primary Care
Doctor is hopefully the one you already know and trust for
your basic medical care. Usually, this doctor is a Family
Practitioner by training, but may be an Internal Medicine
doctor or a Gynecologist. They will often stay involved to
take care of your health beyond that of cancer care and
help in situations where medical management is required
around the time of surgery.
Surgical Oncologist - Surgical
oncologists are surgeons who spend extra years training to
surgically take care of cancer patients. They are not a
substitute for a gynecologic oncologist, but may be very
helpful when your surgical needs go beyond that of a
gynecologic oncologist. For example, while gynecologic
oncologists are trained to perform surgery in many areas of
the body, a surgical oncologist may be involved when a
large part of the liver needs to be removed or chest
surgery needs to be done.
Nurse Practitioner -
Nurse-practitioners are nurses who have gone beyond the
basic RN degree and received extra training in healthcare.
They may assist your doctors by performing examinations on
you and may or may not be authorized to write prescriptions
for medications you need. This depends upon the State you
live in.
Oncology Nurse - Oncology nurses are
RNs who have specialized, and are often specifically
certified in, cancer care. Most often you may have oncology
nurses helping administer chemotherapy to you; something
that they are specially certified to do.
Social Worker - Licensed social workers
are your connection to broad range of support networks in
your medical facility and surrounding community. Social
workers may intervene by providing individual, couple, or
family counseling, offering group education or support, and
by working with community groups in the development of
resources to assist patients in meeting their own
needs.
A psychosocial assessment provides the basis for the
social worker intervention. This assessment includes
evaluation of patient resources, strengths, and support
systems, such as:
- past coping behaviors
- family support
- living arrangements
- education level
- employment
- leisure interests
- financial situation
The social worker also addresses the patient's
emotional response and reaction to the illness, the impact
of the disease upon the family, the effect on the patient's
relationships and roles, and other personal or social
problems.
Alternative or Complementary
Practitioners - Many centers have integrative
medicine programs, or have at least some practitioners who
represent alternative and complementary approaches to
cancer care. The most proven options are those which help
control your symptoms, help support your strength and
possibly your immune system. These practitioners may have
various degrees including PhD, naturopathy(ND),
chiropractic (DC), or may have no degrees but with
extensive experience in massage therapy, music therapy or
accupuncture/accupressure. Rather than shopping for unknown
practitioners with uncertain skills, the best strategy is
to ask for a referral from an enlightened mainstream
medicine practitioner. There is a lot of misinformation and
misguided people out there, whose advice can harm you and
cause you to lose your best chance of a cure.
Finally, the following are some general questions you
might want to consider in setting up your team and
selecting your main physicians.
- Are you fellowship trained and board certified or
board eligible?
- Who will be my main doctor in coordinating
treatment?
- Do you believe in discussing options with me,
including possible research alternatives?
- If I have problems during treatment who do I call
and how do I reach them? Is this the same on
weekends?
- What costs are covered by my insurance and who do I
talk with about this?
- What kind of support services are available to me
and where do I find them?
- If you are interested in complementary and natural
aids, you may want to ask if your doctor would be
willing to consider or discuss complementary and
alternative options, or refer to a colleague who
can.
To your victory!!